Life update and World PI week

So it's been a while since i last wrote. This is for a number of reasons... But as it is world Primary immunodeficiency awareness week i felt that this would be a good time to update on whats been going on with moi. Ive now been on SCIG (subcutaneous immunoglobulin replacement therapy) for over 3 …

My Rare Disease Has..

So today (28th Feb 2019) is Rare Disease day. The aim of this day is to increase the awareness and understanding of rare diseases both publicly and among healthcare professionals. So, i wanted to share a little bit about the effect of having a rare disease. My rare disease has... stopped me from doing things …

The Balancing Act

Physical and Mental health. For me it often feels like they are either end of a seesaw, one improves as the other worsens. I am yet to find the middle ground where they are both 'ok'. Towards December time, i noticed i had slightly more energy than i had in the previous few months and …

My 2018 round up

So, a fair amount has happened this year... I know we all seem to say it every year, but it has been a particularly hard one for me... here is a list of some of the 'main' events of 2018, both the good and the bad. Came out of a toxic and unhealthy relationship - …

ACT & Dealing with negative thoughts

So, recently i've started reading a new book that was recommended to me by a therapist i saw for a short time and its called 'The Happiness Trap'. Its based around something called ACT, which i actually hadn't looked at in much detail when studying my psychology degree so i was intrigued. ACT stands for …